Overview

PVRI Global Deep Phenotyping PH Registry

The PVRI GoDeep Registry is a worldwide deep phenotyping pulmonary hypertension (PH) database spanning over all contintents. Our data offers insights into specific geographical and ethnical profiles of this disease. Furthermore, researchers can utilize the registry to identify possible study participants for clinical trials. Normal values, prevalences and incidences of specific pathologies can be derived.

Key features

Number of PH patients

~30,000

Comparator subjects without PH

~2,000

Data points

> 8,000,000

Number of parameters/variables

~350

PH diagnosis class WS2013/2018 Simonneau et al.

✔

WHO functional class PH

✔

Comorbidities

✔

Survival & cause of death

✔

Right heart catheterization

✔

Spiroergometry

✔

Echocardiography

✔

6 minute walk test

✔

Lung function test

✔

PH specific drug therapy

✔

Imaging methods MRI / Chest CT

✔

Availability of bio samples

✔