Once established, the PVRI GoDeep registry will be by far the largest deep phenotyping PH data bank worldwide (expect > 25,000 patient data when fully established) and b) the only deep phenotyping PH data bank spanning over all continents, thereby offering insights into specific geographical and ethnical profiles of this disease.

With the three starting contributing participants to date, our database already contains ~10,000 patients with PH diagnosis and more than 80,000 visits.
To illustrate the capabilities of our dataset, we generated three showcase diagrams displayed below.

Showcase 1: Percentage of patients in diagnostic class per country

Showcase 2: Distance walked in 6 minutes, 0-60 months after diagnosis PAH vs CTEPH

Showcase 3: Relative percentage of WHO functional class in PAH patients 0 to 60 months after diagnosis