Once established, the PVRI GoDeep registry will be by far the largest deep phenotyping PH data bank
worldwide (expect > 25,000 patient data when fully established) and b) the only deep phenotyping
PH data bank spanning over all continents, thereby offering insights into specific geographical and
ethnical profiles of this disease.
With the three starting contributing participants to date, our database already contains
~10,000 patients with PH diagnosis and more than 80,000 visits.
To illustrate the capabilities of our dataset, we generated three showcase diagrams displayed below.
Showcase 1: Percentage of patients in diagnostic class per country
Showcase 2: Distance walked in 6 minutes, 0-60 months after diagnosis PAH vs CTEPH
Showcase 3: Relative percentage of WHO functional class in PAH patients 0 to 60 months after diagnosis